A researcher is willing to mention patients! And (gasp) insist that patients must be involved in research. Okay, there is some small print here - Harvard may not be calling you and other patients you know just yet. But her story is amazing.
Corrie Painter, PhD on work at Broad Institute of MIT and Harvard--
"My personal experiences with an exceedingly rare breast malignancy called angiosarcoma allowed me to peer through a window that included a lumpectomy, a mastectomy and chemotherapy, with none of the research or support that is poured into breast cancer awareness. "
What blew me away is that Broad advertised for a "professional patient."
Please follow the link and read this for maybe a little hope. Or Google BCSM - the article is in their headline today. And if you like, check out her "boss" research head Nikhil Wagle, MD, on Twitter.
I wish you health.