Sunday, March 17, 2019

After Tamoxifen. Something spooky. MIDNIGHT SPECIAL

They're back!

Those scary looking red blobs under the epidermis.  Had them all the times in recent years.  Age ago, the oncologist told me big guys would come in with them, looking as if they'd been beaten up.  But somehow we'd get onto another subject and I never got him to narrow down on what they were or what caused them.

I coasted along, assuming that something...Tamoxifen or maybe Prolia...or both...were attacking my veins or capillaries.

Then in the past months, I almost never had one.  It sure wasn't less stress fluffing up my veins.  Recently, sometimes I didn't have any.

This week?  They're back..a couple big as my little fingernail and bloody-looking.  What is this?

Short time out for quick Google search, which I was planning weeks ago...

Didn't find much of anything.. platelets mentioned..but.   My labs from the oncologist were usually so good he was delighted.  My labs for other tests (from family doctor) are normal. 

Have you had these?  What was the diagnosis?  I don't see the oncologist for a

I wish you health.

Friday, March 15, 2019

Half a month without Tamoxifen


Do I feel better without it?  Uh...No.  For one thing, we have measles in our area.  I remember Chicken Pox (Mom concerned about our eyes. Put us kids together in one room, etc,.)

Measles?  Nothing.  So I brooded.  Doctor offered the test.  Oops! Not immune.  Got the shot (not painful) but I have to wait six more days  before I can feel sure I'm immune.

So far, as to Tamox, I don't have muscle aches and "remembered after-effects" that some women have had.  So will that last?

So far, not scared into wanting more Tamox.

But:  It's been clear for years that oncologist was not correct when he told me I wouldn't have that tummy bulge he has.  I have it.  Did I get it from Tamox?  Who knows.  I was often lazy during those five years.  Now I'm collecting exercises for that bulge and more.

John's Hopkins has a giant pack of health handouts for diabetes, but I'm interested in the part: "The Skinny on Visceral Fat ... stored deep in the belly is the most harmful kind." There's a bit on exercise.  I'm having laptop trouble switching back to that, but I usually just ask Google for John's Hopkins exercises for visceral fat.

Okay, doctors and patients:  what's your experience with anyone being BETTER after leaving Tamoxifen?  How long will it take?

I wish you health.

Friday, March 1, 2019


Spent a lot of time with my family doctor trying to clean up a few problems.  He is being great about seeing relationships of one or two probably minor problems to each other and what to do.

We didn't even mention Tamoxifen.  But my younger daughter talked with me on the phone and tactfully inquired about how a woman my age could really have any loose estrogen wandering around to get in trouble with a breast cell.  I read a little about that on line last night.

Don't let me get started waking up mornings hoping to find out if I'm "better without it" already, as the oncologist suggested was a possibility.

I have a lot of blessings to be thankful for, and a new prescription as a sort of flag for  starting over.

I wish you health.