Thursday, August 20, 2015

DCIS SURVIVOR? Me too. Treatment wasted? Read Both of these


After the biopsy, I read a major hospitals' interactive questionnaire on treatment.  

Yes, the surgeon told me after lumpectomy I did not have to do anything more.  Recommended I see the radiation oncologist and a medical oncologist.  I didn't get another opinion first.  I had the radiation.  I take Tamoxifen.  Now....from JAMA and...


Breast Cancer Mortality After a Diagnosis of Ductal Carcinoma In Situ FREE 

Get the link from Twitter, or: http://oncology.jamanetwork.com/article.aspx?

***
articleid=2427491#.VdXuHejW43w.twitterhttp://www.nytimes.com/?action=click&contentCollection=Health&region=TopBar&module=HomePage-Title&pgtype=article

BREAKING NEWS

Sunday, August 2, 2015

BC - IS MORE RADIATION THE ANSWER FOR YOU? How do you feel about this?



http://www.thespec.com/news-story/5746766-extra-radiation-can-stop-breast-cancer-from-recurring-study/

see THE HAMILTON SPECTATOR

I couldn't find this article without pasting the link above, but it was there this morning.  Would really like your feedback on this.

I wish you health.

Friday, July 31, 2015

OUR WOMBS - BEFORE WE BLAME TAMOX


Got this visual at:
@WombCancerUK  find them on Twitter

Wednesday, July 22, 2015

CANCER STRESS ONLINE ARTICLE



Psychological Stress and Cancer

National Cancer Institute  Reviewed in 2012

I googled this and it popped right up.

This goes for stress that is not directly from the cancer.  Like being isolated.  What a big chance for stress when relatives pretend cancer isn't happening or isn't serious, and maybe worse stress when relatives and friends interferes way too much?

I wish you health.

PS Jo Taylor (creator of  After Breast Cancer Diagnosis web site) on Twitter today with websites giving comfort to cancer sufferers.

Saturday, July 18, 2015

MAD AS HELL-- DCIS - Did Radiation take away my future chances?

If DCIS ever comes back , a chance I didn't know existed has already been taken from me!  I could possibly have had a second lumpectomy, avoided major surgery, been home the next day. But instead, with the firsts DCIS, I got a month of radiation, mostly on the entire breast. The news in this article not only blew me away, it made me furious about a possible lost chance.



Can Women Get More Than One Lumpectomy?  

 Dana-Farber  June 15, 2015  

Like you, or your mom or your grandmother, I am over 70.  

Did no one in my area know about this when I was diagnosed?  Were one or two doctors dead set against using this information? Was everyone afraid to go outside of what has recently been the "standard of care?:Is this all brand new information?   The surgeon had assured me that the radiation oncologist would not give me radiation if I didn't need it. He didn't say how much.

True, my DCIS was perhaps not eligible, but decisions offered were limited - radiation or go home.

If you are or your mom is over 70, read the fourth paragraph.  Read it again. I was over 70, and no one, mentioned any of those possibilities.

 In fact, read it all.

 "Women who are diagnosed for the first time with breast cancer

 in multiple spots traditionally have had a mastectomy. 

However, a new trial at Dana-Farber/Harvard Cancer Center 

offers these patients multiple lumpectomies followed by radiation, 

rather than removing the entire breast."


From INSIGHT Dana-Farber publication


I wish you health.

Thursday, July 2, 2015

ANTI-INFLAMMATORY DIET + PRE-DIABETIC DIET - Losing weight

What I don't eat any more


As my doctor says: avoid processed sugar and
 processed flour (you know, like white flour)
BTW The diet sheet doesn't seem to know who
 gets inflammation from dairy, wheat, eggs, and who doesn't

Whole wheat muffin from usual mkt - has sugar
Whipped sweet potato from same mkt has sugar
My favorite almond milk that has sugar
The skin on the supermarket whole-chicken-to-go (sugar)
My beloved Starbucks butter croissant and Starbucks butter croissant egg sandwich
White rice
Instant oatmeal pkgs.  (Even the "original" has sugar!)  Here I am, cooking oatmeal.


How an over-65-er gets that extra protein we need

Avocado - highest fruit protein I can find
Peas - also high protein, but not recommended every day by one writer on type 2
Heaping 2 teaspoon of 0% yoghurt (read the label:  even "plain" yoghurt has sugars like milk sugar plus 1 heaping tsp of vanilla latte yoghurt from my market


What I hate about avoiding red meat:

How in the world do I eat so much chicken and avoid getting sick and tired of it?
 I'm already getting tired of tuna (needs lots of Lemonaise)  and can't afford fresh salmon.
And the in-house roasted turkey at the market is a bit boring.  Quite a bit boring.
Some clown, er, manufacturer,  put sugar in the chicken broth I bought!!!!!!
And did I mention I'm also supposed to be on the anti-Gerd diet, which is the opposite of all this?


What saves me - and helped kiss a few pounds goodbye

I always liked crisp head lettuce and cucumber - puts water in my system and fills me up
Turbinado sugar or other unprocessed sugar in almost invisible amounts
Lara bars - The fiber from the nuts balances (so far)  the dates in the bar + no soy
Unsweetened almond milk (does have tapioca starch in microscopic amt.)
O'Jai Cook Lemonaise - has fat and eggs in it, but I need the biotin and flavor
Starbucks usually has bananas
Limited cheese
I still drink coffee

Also, son-in-law made awesome onion torte with anchovy and olive (crust has all health grains, no white flour)

Wild experiments

Purple and other weird carrots - ugh, tough
Sweet potato strips, not fries, from mkt.  Recipes, but I can just boil a few to help survive the monotony.


What I think I need and might get

Both diets forget what pregnant women have known for centuries - something dry can settle your stomach.  A nearby restaurant says I can go in at breakfast and get whole wheat toast.  We'll see.

PS I'm really on my feet today, so may allow myself a little more Vanilla/Latte yoghurt (insert smile)

I wish you health.

Monday, June 29, 2015

MUST READ: Metatstatic Breast Cancer - A Patient is doing the research?!

A researcher is willing to mention patients!  And (gasp) insist that patients must be involved  in research. Okay, there is some small print here - Harvard may not be calling you and other patients you know just yet.  But her story is amazing.

http://bcsmcommunity.org/all-hands-on-deck-the-metastatic-breast-cancer-project/

Corrie Painter, PhD on work at Broad Institute of MIT and Harvard--

"My personal experiences with an exceedingly rare breast malignancy called angiosarcoma allowed me to peer through a window that included a lumpectomy, a mastectomy and chemotherapy, with none of the research or support that is poured into breast cancer awareness. "

What blew me away is that Broad advertised for a "professional patient."  

Please follow the link and read this for maybe a little hope.  Or Google BCSM - the article is in their headline today.  And if you like, check out her "boss" research head Nikhil Wagle, MD, on Twitter.

I wish you health.