Sunday, November 10, 2013

BAD NEWS What we really, secretly think

Carcinoma in situ.  Yes, it could be worse.  We try to be glad it's not worse.

We try to believe that the medicine won't make our current life worse.  For years.

Isn't medicine supposed to make it better?

Are these side effects supposed to make me want this medicine?

Is this the best they can do?

Was putting a man on the moon more important than finding out what actually causes breast cancer?

Until we know the cause, isn't any medicine just sort of a guess?





Friday, November 8, 2013

BAD NEWS? MUST SEE A doctor remodels my mood


What do you do before a double mastectomy? Dance, of course - TODAY.com
www.today.com
In a six-minute video that proves Beyonce makes everything better, a breast cancer patient dances in the operating room with her doctors...

Please see her dancing photo on my Facebook page!  Or read more on today.com

Thursday, November 7, 2013

BAD NEWS- How to Think About It Part 2

Apologies if I've told this before. ..

A story:

Maybe three years ago a journalist was talking to victims of a serious flood.  Four feet of muddy water had plowed into a poor neighborhood and into the people's small homes that we might call huts.  One woman and her family rescued a few belongings from the mud and were carrying them up a hill to dry out.  She told the reporter she was thanking God for bringing the flood in the daytime.  That if it had been at night, the family would have been sleeping--they would have died in their sleep.

It is humbling to think how far I get from looking at the big picture and finding the blessing.

Wednesday, November 6, 2013

BAD NEWS ways to think about it

The doctor's voice was so cheery that for a fraction of a second I thought the news was good.  How can someone be so cheery when the next sentence starts. . .There's cancer... . .

Someone said to me two days beforehand that the test result I feared might be a blessing. Trying to think of a blessing it could conceivably be.  Not coming up with much.  Well, it forced me to get closer to a supportive friend, and to enlist a kind of support I've known for almost a year that I should ask for.  And it forces me to write.

A story:   Once years ago my car broke down in the rain, in the dark, on a stretch of divided road where there was no place to turn around.  The police sent a tow truck, an eighty dollar tow.  The tow truck driver asked me if I couldn't believe it could have been worse.  The next morning I had an appointment with my wonderful counselor who said, Yes, it could have been worse.  And it could have been better.

I think of those words now.  It could be worse.  It could be better.


Monday, November 4, 2013

BAD NEWS How to Avoid Part 2

Val Jones, MD, on KevinMD.com  today

The one little question that could save your life

Also mentions a couple of interesting sites for employees to request

Saturday, November 2, 2013

BAD NEWS - how to avoid

Just listened to Steve Gullans on "safe dosing" on TEDmed.  Focus on chemo and monitoring doses.

Friday, November 1, 2013

IF I RAN A HOSPITAL DESIGN FIRM - mammo day

I just read the most wonderful thing that made me want to be queen of hospitals.  In Inc.com, an article Ten Office Design Tips to Foster Creativity.  A main theme of the article is letting people be themselves and spend their days where they can be themselves and do their work their own way.

 Letting patients be themselves is perhaps one of the two things hospitals do worst. 

In one slide accompanying the article, there are lawn chairs, and people seated on the grass!  I would have risked fewer germs sitting in the grass instead of crammed in elbow to elbow on a long banquette with dozens of others in a stuffy room before my first day-surgery in L.A. county.  And I might have felt better.

Endlessly waiting in another part of the same hospital once, I had a stunning view of the elevator.

 Interviewing at Ping-Pong tables is mentioned in the Inc. article.  Supposedly it shakes interviewees out of their memorized interview speeches.    I can't think of a reason why there couldn't be Ping-Pong in the waiting area for mammograms.  A reminder that fun is supposed to be part of life?  Instead we are supposed to read quietly and remember that we're there to stay healthy, but we know damn well that the mammo unit exists only because somebody might be getting  cancer.  Otherwise it would be a fruit tasting room.

One more thing about the article:  it mentions the need for society vs the need to get off somewhere and work intensively.  Luckily, the local hospital in the main mammo waiting room has coffee and snacks, and people do chat a bit at the coffee counter.

 But if we need a little peace and quiet or privacy to digest the latest news from the umpteenth mammo film, where to go?  Hide in the ladies' room?  There is a smaller, glaring, and much less comfortable waiting room where one may try to get it together in full view of other women marching bravely toward the biopsy room.  

Who decides what these waiting rooms will be?  An interior designer who has never been called back for "more films?"  And interior designer who gets way too much input from a hospital administration that wants photo-op rooms where everyone is quiet and never cries or argues?  Kinda like detention?

I suspect I'll write or rant more on this later.